What should I make sure I ask my doctor tomorrow?

Tomorrow I am officially being diagnosed with from the sounds of the paperwork I recieved a week ago a type of mitochondrial disease/dysfunction. SOmehting in that realm...I had a muscle biopsy four months ago, and got the paperwork only recently. I am seeing like a neuro-metabolic specialist who specializes in mitochondrial disease and these types of things. What types of things hsould I tell him? What next should I expect? Will I be getting medication? My sypmtoms have gotten a lot worse since then, I've developed tremors and my involuntary falling has gotten worse. I've also had isssues with food...stomaching it and loss of appetite. My stiffness has also gotten a lot worse.. Should I tell him? My mother is aware of this I am a 15 year old female, with osteoporosis too if that helps (my osteoporosis wasn't onset by anorexia or somehting like that, something I've had since birth I believe).